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Lisa FRIEDLANDER

MCU-PH, Service d’Odontologie Hôpital Pitié-Salpêtrière - APHP.
Centre de Compétence des Maladies Rares Orales et Dentaires (ORares)

WP4

EDUCATION DIFFUSION DES DONNÉES

CCMR O-Rares et service de MBD, hôpital Henri Mondor
Pôles d’activités

Pôles d’activités cliniques: , Réhabilitations prothétiques , Maladies rares , Handicap , Pôles d’activité scientifique: , Epidémiologie clinique et sociale , Laboratoire ECEVE INSERM UMR 1123 , Epidémiologie clinique et évaluation économique appliquées aux populations vulnérables ,

Projets

QualiDOS: PREPS en cours. Impact d’une prise en charge commune sur la qualité de vie orale des patients porteurs de maladies rares osseuses constitutionnelles : essai contrôlé randomisé en cluster au sein des réseaux de maladies rares et ORARES. , QualXLH: Evaluation en méthode qualitative de la qualité de vie orale de patients porteurs d’hypophosphatémie liée à l’X. , Institut IMAGINE ( mobilité): Evaluation des enjeux de santé et de réhabilitation orale chez les patients atteints de maladies rares sur la plateforme Dr Warehouse.

Publications récentes
  • Translation and validation of the French version of the child perceptions questionnaire for children aged 11 to 14 years old. (CPQ11-14) short-form. Clin Oral Investig. 2024 Jun 28;28(7):403. PMID: 38940970 DOI: 10.1007/s00784-024-05793-1
  • Determinants of dental care use in patients with rare diseases: a qualitative exploration. BMC Oral Health: 22 June 2023. DOI : https://doi.org/10.1186/s12903-023-03048-1
  • The Smart Data Extractor, a Clinician Friendly Solution to Accelerate and Improve the Data Collection During Clinical Trials. Stud Health Technol Inform. 2023 May 18. doi: 10.3233/SHTI230112
  • Consideration of oral health in rare disease expertise centres: a retrospective study on 39 rare diseases using text mining extraction method. Orphanet Journal of Rare Diseases . 2022 Aug 20; doi: 10.1186/s13023-022-02467-7
  • Full-mouth rehabilitation choices depending on amelogenesis imperfecta’s type: A familial case report. Clin Case Rep. 2022. doi: 10.1002/ccr3.5459.
  • Oral health-related quality of life in patients with X-linked hypophosphatemia: a qualitative exploration. Endocr Connect. 2022. doi: 10.1530/EC-21-0564.
  • Elements of morphology: Standard terminology for the teeth and classifying genetic dental disorders. International Group of Dental Nomenclature. Am J Med Genet A. 2019. doi: 10.1002/ajmg.a.61316.
  • Oral health related quality of life of children and adolescents affected by rare orofacial diseases: a questionnaire-based cohort study. Orphanet J Rare Dis. 2019. doi: 10.1186/s13023-019-1109-2.
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